Inspirational parents episode. Little Ellie.

Broadcasted on Friday 29th October 2010, I would be interested in making contact with the parent(s) of little Ellie, the young girl with holoprosencephaly. My 8 month old son Kieran also has the mild form of HPE with cleft palate, and I am keen to learn as much as possible. Kids with this very rare disorder in the UK are few and far between and I would love to be in touch with as many parents as possible in a similar situation to myself. I was very heartened and encouraged by little Ellies story and the progress she appears to be making.

Thank you in advance.
I hope to hear from either someone from the show or anyone who would have contact details for Ellies parents.

Victoriaxx